Her journey began when she was diagnosed with ALS, also known as Lou Gehrig's Disease, in the summer of 2022.
She realized how difficult it can be for someone with ALS to communicate with first responders in an emergency situations.
That's why she created 'Wendy's Wish 911,' a program developing guidelines and a curriculum to teach both parties what to expect and how to best resolve life-threatening situations.
This program is being developed with the help of the ALS Hope Foundation, The Griffin Gives Foundation, Temple Health, and the Upper Gwynedd Twp. Police Department.
One main talking point is how those with ALS may exhibit difficulty breathing. When an ambulance unit arrives, they may be inclined to utilize an oxygen mask on the patient.
"Often times, they lay them down flat, right on the ground, maybe they put oxygen on them," said Dr. Lyle Ostrow with Temple Health. "Those are two things that are very bad to do to somebody who has a neuromuscular disease."
In this case, a patient with ALS receiving extra oxygen may have their brain tricked into thinking it does not need to breathe.
Wendy's Wish 911 is still actively developing its list of guidelines. They plan to continuously update their website and are searching for more partners to spread the word.
To learn more, visit their website.
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